New Schwartz-Jampel Syndrome Contacts
In the last week I've made two new SJS contacts. One person is an adult female named Elizabeth and the other is the mother of a male child. I've created a Schwartz-Jampel Syndrome Google Map with their pictures and all SJS people I have met through email, in person, via a healthcare worker, or through a relative of a person with SJS.
View Schwartz-Jampel Syndrome Map in a larger map
You can read her story on the Google Groups SJS forum.
Tags: Front Matter | Schwartz-Jampel Syndrome
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